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BEING DISARMED BY DISABILITY

written for a UN women's magazine 2006

When asked about his religion, the Dalai Lama is quoted as saying: ‘My religion is kindness.’ He suggests that is not what we believe in that matters so much as how we actually act in the world. This is not in any way to denigrate formal religion but to point up that familiar caution about not mistaking the map for the territory; not thinking that mentally allying ourselves to a particular set of values is a substitute for actually living them and demonstrating them in a practical way. 

We might ask ourselves for a moment what we think kindness actually means. I think of it as a gesture of support initiated by the recognition of another who is of the same kind and who we therefore intuitively know feels the same as us; in other words the empathic recognition of another human being that signifies a basic understanding of our shared humanity. One thing I am learning from my time in Nepal is that whilst it is indeed a gift to receive kindness it is also a great gift to be inspired to be kind. 

When I first came to Nepal nearly 4 years ago I met a trekking guide called Tika. He told me he had been born in the Solu Khumbu to a lowly family living in deprived circumstances. He described his mother as a particularly generous and hospitable woman who, despite the family’s circumstances, always shared whatever food there was in the home when guests arrived at her door. One day a group of relatives and their children arrived and the only food she had was a single orange. The orange was duly peeled and broken into segments and even the segments were divided up so that each person had a small piece. After the guests left my friend was perplexed and asked his mother why she had bothered to serve the guests such tiny pieces of food when she might just as well have eaten the orange herself. His mother’s reply was ‘If I had eaten that orange it would simply have been a bit of food that went in one end and came out the other. But by sharing it with others it becomes a little piece of kindness.’   

This story had a strong impact on me; that someone from one of the poorest countries of the world, and who had so little, should be inspired to be so generous. It demonstrates how temporary self gratification can be put aside in favour of an act of mutual enhancement. By contrast, Western cultures that have so much material wealth tend to hold on to it tightly as if in constant fear of it being taken away. It is not a climate that inspires much kindness a lot of the time and reveals the underlying emotional and spiritual poverty that consumer societies so frantically attempt to fill. 

Since my original visit to Nepal in 2002 after recovering from breast cancer I have become involved with a remarkable group of physically disabled children in Kathmandu. Having to face up to my own physical limitations and the reality of my mortality was perhaps the necessary pre condition for this meeting. Being treated for cancer was an experience that totally stripped me down physically and emotionally. It was this dramatic experience that later made me determined to follow a dream to visit Nepal.  

I thought I was coming to Nepal trek in the mountains but my lasting impressions of the country were of the people I had met and an experience of warmth and hospitality unknown in most western countries. Struck by my experiences I returned soon after and it was then that my friend Tika took me to visit a centre for handicapped children he had helped found in 1997. After that first visit to Kathmandu’s New Life Centre for Disabled Children 3 years ago, I left in tears and didn’t believe I would be able to face working alongside such seemingly deprived and physically deformed children. But gradually I saw past the amputations and withered limbs, the tattered clothes and small, unwashed bodies to a group of children hungry for attention and full of charm, humour and affection. It was both a painful and wonderful process in which I felt initiated into an experience of extreme tenderness and humility. I came to understand what an incredible gift it is to be inspired to feel profound compassion.  

Disability often frightens and disturbs us; we may prefer to turn away from it rather than engage with the discomfort we experience. Many of us live in a consumer world where fear of imperfection, in whatever form, is manifest in the secret belief most of us harbour that with a perfect body and indeed some kind of perfect physical environment we will find happiness and fulfilment e.g. if we have the right diet, the latest fashion accessories, the right car or the most modern domestic gadgets all will be well. The reality is that we are satisfied for 5 minutes before the craving starts again, as those in the advertising world are so well aware of. This hidden and largely unacknowledged addiction demonstrates a form of collective disability. Those who can never hide their misshapen, less than perfect bodies, challenge the vulnerability that lies behind this cultural craving. In other words a disabled child can act as a mirror to the hidden insecurities we have about ourselves and the often disabling fear we have of our own imperfections. 

These days I find myself complaining more and more often about the symptoms of ageing – my painful joints and wrinkling skin, having less energy and a spreading waist. This change in body image and the accompanying feelings of unattractiveness and inferiority is often distressing to me; even shameful. Shame makes us want to hide and turn away from others; we feel humiliated and diminished. We can also project that distress onto others by belittling them in our own eyes so as to preserve a less painful and more acceptable image of ourselves. The children teach me to try and look beyond my neurotic insecurities.  I feel enhanced by them as again and again they remind me of how my narcissistic preoccupations can actually be transformed into a source of kindness, generosity and compassion.  

For this reason we do not use promotional material that either exploits the bodies of the children or manipulates the emotions of potential donors and well wishers. It diminishes the children to pity them and it also diminishes us to feel guilt about their circumstances. Guilt breeds resentment whereas a sense of social responsibility born out of genuine compassion nurtures a feeling of human connection and well being for everyone. The children’s physical limitations have not disabled their spirit. This is a lesson for all of us in aspiring to be more accepting of ourselves and to not be handicapped by our own emotional or physical fears. 

How then can we bring more compassion and kindness into our world? Perhaps we can start by reminding ourselves how we feel when we receive or offer genuine kindness. We can also notice how we respond to our limitations and to the limitations of others. Do we give ourselves and others a hard time for being less than perfect, however that may manifest? Do we promote an image of ourselves as infallible and then project imperfection onto others? Do we see others as faultless and then make ourselves the victim of our own perceived inadequacies? Or can we soften our hearts and see that we are all human and all struggling with our limitations; that it is indeed this very struggle which makes us human and allows us to understand how others feel when they are suffering. This shared understanding that underlies the meaning of empathy, relieves us and others of the burden of feeling different, stigmatised and inferior.  

In Nepal it is perhaps not only time to disarm militarily, but a time for everyone to start being less defensive. We can gently lean into the soft spots we all have that generate self consciousness, loneliness or shame and a longing to somehow be more acceptable than we feel we are. The minute we do that we remember how it feels to be disabled in its myriad of forms; there is no them and us, there is only tenderness, understanding and a compassionate desire to reach out in recognition of our shared human experience. We start to disarm; we begin to ask ‘How can I help?’, and we begin to engage in the mutually transforming process that kindness inspires. 

 Fran McGowan

Chairperson of The Nepali Children’s Trust.
Honorary board member of the New Life Centre, Kathmandu.

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